Parent Match

The Dup15q Alliance Parent Match program provides support to our families during difficult situations that may require emotional support. We hope to decrease family stress and feelings of isolation by providing this service to our families. This confidential service is available to any Dup15q Alliance family.

  • Has your child been recently diagnosed with a duplication of chromosome 15q?
  • Are you going through a challenging time in your child’s life, such as the onset of seizures, difficult new behaviors, or problems with education or therapy?
  • Would you like to talk to another parent of a child with your child’s exact same diagnosis?
  • Do you have limited or no access to the internet so you cannot take advantage of  Dup15q Alliance's online communities?

What if you could get matched with a mentor who not only understood your child’s diagnosis first hand, but also had a lot of experience raising a child with this disability? Would you like to be in touch with someone who was willing to listen to your grief, fears, hopes, and questions, and share their experience with you?

After registering with Dup15q Alliance, families can contact the Regional Representative for their area to request a parent match. The Regional Representative will ask you some questions and fill out an intake form that will help find an appropriate match in our database of mentors. The mentors are parents of a child with a duplication of chromosome 15, who have participated in the Dup15q Alliance Mentor Orientation and have met all of the mentor requirements. The mentors know what it is like to feel isolated and distraught during tough times, and they are here to help! All requests and information are kept confidential.

Once a potential match has been identified, the family can expect a phone call from a mentor parent within 48 hours. If the match is not a good fit, then the family or mentor can relay this information and our coordinator will find an alternate mentor. It is our hope, based on extensive background information on our mentors, that an appropriate match will be made from the start. Our main goal is to provide a supportive service to the family in need, and we will do what we can to meet that goal. 

If you are interested in participating in this program, either as a mentor or as a family seeking a mentor, or have further questions about the program, please contact your Regional Representative.