Tyler's Travel Fund was created in honor and in memory of Tyler Kobuszewski, a sweet and loving child with dup15q syndrome who passed away in 2014 at the age of 13.
The fund is designed to help families who would like to have their child seen at a Dup15q Clinic, but do not have the means to do so. Specifically, the fund hopes to help individuals struggling with hard-to-control seizures (despite local treatment) get to a clinic. Tyler's Travel Fund can offer grants of up to $1000 to cover the costs of a clinic visit* for the affected child and up to two parents/guardians.
Families hoping to benefit from Tyler's Travel Fund should fill out the application below. The application will remain confidential, shared only with the clinic travel review committee. The committee will review the application, assess the urgency of the need for a clinic visit, and approve or deny the request. Funds are limited, but the hope is to help as many families in need as possible.
*Funds are for a future visit only, not reimbursement for a past visit.
We were all puzzled when Tyler began having seizures. In trying for find help for him we exhausted every resource we could find in our area. When he developed a second type of seizure, drop seizures, we planned a trip to the Dup15q Center of Excellence at Massachusetts General Hospital in Boston. There we saw Dr. Ron Thibert, the head of the clinic. Dr. Thibert's knowledge of “our” kids is invaluable. He was able to adjust Ty’s meds, and over the next few months, the “drops” subsided.
The Dup15q Clinics are a critical component to creating targeted treatments for dup15q syndrome, and getting our children the best care possible. We had firsthand experience of the true difference they can make in the lives of our kids.