Vanessa Vogel-Farley, Executive Director
Vanessa grew up on a family dairy farm in rural Wisconsin; she then went on to college at the University of Minnesota-Twin Cities, where she studied Chemistry, Biology and French. While there she joined a research lab at the Center for Neurobehavioral Development. This experience got her interested in the processes associated with brain development during the neonatal period into adolescence and that factors that can affect normal development. She was the Clinical Research Coordinator for the Division of Developmental Medicine Laboratory of Cognitive Neuroscience, Boston Children’s Hospital, working on collaborations with scientists from MIT and Harvard examining several clinical populations, including autism. She also served as Director of Operations of ACEing Autism from 2008 through 2015. She is married and the mother of 3 young boys (Oliver, Thatcher and Carter) who keep her very busy in her "spare" time.
Andrea Worthen, Adminstrator
I am so honored and encouraged to be a part of Dup15q Alliance. I will be assisting the alliance with many of the day to day functions that support our great and dedicated team. I was brought on by Vanessa Vogel-Farley after years of parenting close by each other with a mutual admiration for compassion and hard work. I have a background in communications and have spent many years in the Real Estate industry. I am married with a 12 year old daughter and a 7 year old son, we live in Highland Park IL. I truly am moved by the families that are a part of Dup15q Alliance and I enjoy assisting and supporting all of you!
Lauren Weissberg, Awareness and Outreach Coordinator
Lauren holds a BA in English Literature and an MA in Counseling Education. Lauren works full time as a School Counselor at the high school level. A native New Yorker, Lauren now lives in New Jersey with her husband Marc and two sons, Reid and Holden.
In May 2016, Holden was diagnosed with Dup15q Syndrome. Upon receiving Holden’s diagnosis, Lauren has been determined to raise money and awareness for Dup15q Syndrome so that all of the impacted families can have something to hope for and believe in. In September 2016, she hosted the “Hope for Holden to benefit the Dup15q Alliance” event and raised over $10,000. Due to the tremendous success of this fundraiser, Lauren knew it would have to become an annual event, and immediately started to plan for 2017. Lauren enjoyed working on this event so much and she knew she wanted to do much more. Lauren has since been instrumental in planning various smaller scale fundraisers to benefit the Alliance and has also taken to social media to help raise awareness for Dup15q. Lauren is thrilled and truly honored to be an official member of the Dup15q Alliance and feels strongly that her role as an impacted mother is going to inspire her to work even harder to raise money and awareness for all of our children!
Adrienne Felterman, Accounting
Adrienne lives in Houston, TX with her husband and four children. Her second child, Charles, has Dup 15q syndrome. She is a CPA with a bachelor's and master's degrees in accounting from Louisiana State University. Adrienne has experiencing auditing not for profit organizations. She enjoys volunteering with the Alliance and knows first hand the positive impact the Alliance has on Dup 15q families all over the world.
Alexandra Wendt, Fundraising and Development Consultant
Alexandra is a development consultant for DUP15q Alliance. With more than 10 years in the non-profit sector, Alexandra brings passion and experience to each of her clients. Her expertise with fund development, major gifts, benefactor relations, marketing campaigns and project management helps her client achieve long term success. Alexandra received her Bachelor of Science in Communication Studies from Northwestern University. She has had the privilege of consulting for many amazing non-profits including the American Red Cross of Chicago, The United Service Organization and the Mayo Clinic.