Past Webinars

SUDEP: Knowledge is Power

View Webinar Here

August 1, 2019

From the Epilepsy Foundation: Patty Osborn Shafer, RN, MN; Jeff Buchhalter MD, PhD; and Sally Schaeffer talk about SUDEP. Topics covered include:

  • What is SUDEP?
  • How common is SUDEP?
  • Who is at risk for SUDEP?
  • How can I reduce my risk?
  • Should I talk to my doctor about SUDEP?
  • How can an epilepsy specialist or epilepsy center help me?
  • Where can I get support if I have lost a loved one to SUDEP?

Understanding the Brains of People with Dup15q

View Webinar Here





Toll of Caregiving in Parents of Children with Medical Issues

Dup15q Alliance joined with several other rare epilepsy organizations to present a three-part series on the toll of caregiving in parents of children with medical issues.
Eileen Devine is a licensed clinical social worker. You can read more about her here. She is also the author of this blog post. Eileen seeks to provide families with tangible things to do – everything from introspection and reflection (how to do it, why it’s important, etc.) and then more concrete self-care practices that relate to mind/mental health, body (physical health and also nervous system health) and spiritual health. She often also talks about relational stress that is present in family units and parenting partnerships/marriages and what can be done to help strengthen those relationships as well.




UC Davis MIND Institute's Distinguished Lecturer Series 2018/2019

The UC Davis MIND Institute’s Distinguished Lecturer Series hosts public lectures by nationally and internationally-recognized researchers in neurodevelopmental disorders. These monthly presentations are intended for both specialists and community members.

Dup15q Alliance Proffesional Advisory Board member Edwin Cook, Jr., M.D., presents Translating the complex genetics of autism 

View series here

Use of Cannabinoids to Treat Seizures

Orrin Devinsky, NYU
Friday, September 11, 2015

View video here.

GI Issues in Dup15q Syndrome

Mark Corkins, Le Bonheur Children's Hospital
Wednesday, September 2, 2015

View video here

Seizures and Dup15q Syndrome

Dr. Ron Thibert, Boston Dup15q Clinic
Tuesday, September 23, 2014

View video and slides here

​Genetics of Dup15q

Brenda Finucane, Geisinger Health System
Thursday, October 16, 2014

View video and slides here

Stem Cells and Dup15q Syndrome

Stormy Chamberlain, University of Connecticut
Friday, October 24, 2014

View video and slides here

Alternative Treatments for Epilepsy

Professor Bernard Dan, Paediatric Neurologist

View video here