News

Rare Epilespsy Network
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The MIRROR 2017 (Volume 1)
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#15forDup15q

Take the 15 for Dup15 Challenge!

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Grant Awarded to the Dup15q Alliance
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Infantile Spasms Awareness Week December 1st - 7th

Each year, nearly 1,200 infants are diagnosed with infantile spasms (IS). This devastating neurological condition, if left untreated, can cause developmental delays in a child's growing brain. But we are raisingawareness in hopes of a brighter future.

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A Mighty Partnership

We are thrilled to announce our partnership with The Mighty.  The Mighty was founded by our very own Mike and Sarah Porath, whose daughter Annabel is living with Dup15q Syndrome.

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31 Days of Thanks for Giving

Thank you for Believing and Achieving!

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2017 – A Year of Change and Growth
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Dup15q Families Raising Awareness for Rare Disease Day
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