Board Chair, David Gifford, and Board Secretary, Lauren Weissberg, attended the 3rd annual Rare Disease Day at the Liberty Science Center

Board Chair, David Gifford, and Board Secretary, Lauren Weissberg, attended the 3rd annual Rare Disease Day at the Liberty Science Center in NJ to represent the Dup15q Alliance. The event was free to people affected by rare diseases and sponsored by Ovid Therapeutics, Marinus Pharmaceuticals and Ultragenyx Pharmaceutical, three organizations that develop medications to help those living with rare diseases. It was a wonderful opportunity to network and raise awareness for mostly unknown rare disorders and Lauren was even interviewed by a local tv station as a rep for our group. Read the full article here. https://www.northjersey.com/story/news/2019/03/30/folks-rare-diseases-find-support-liberty-science-center-expo/3313284002/​