Infantile Spasms Awareness Week December 1st - 7th

                                                              More than a quarter of families with Dup15q Syndrome report a seizure within the first year of life. Since infantile spasms can be subtle, many families struggle to be correctly diagnosed and treated.





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We are proud to partner with the following organizations to bring awareness to Infantile Spasms.


Tuberous Sclerosis Alliance
American Academy of Pediatrics
American Academy of Neurology (AAN)
American Epilepsy Society
Epilepsy Foundation of America

National Organization for Rare Disorders, Inc. (NORD)
CURE: Citizens United for Research in Epilepsy
The Danny Did Foundation
Global Genes
The Brain Recovery Project: Childhood Epilepsy Surgery Foundation
American College of Emergency Physicians
Mickie's Miracles
RARE Science Inc.
Seizure Tracker