Rare Disease Awareness Month


























This year's campaigns for Rare Disease Day focused on Tyler's Travel Fund and Dup15q Clinic funding with our push to "Rare Your Blue for Dup15q" .


Our goal for Tyler's Travel Fund was 25K. Our goal for Rare Your Blue was 12K.

We are elated to announce that we have met AND exceeded our fundraising expectations! Donations are still rolling in at this time, but to date, we have raised $47,101 in the month of February! Including a donation of 20k from a generous donor!


 Thank you to all of our fundraisers for helping make this dream a reality. Remember: Together We Believe; Together We Achieve!