The Global Commission to End the Diagnostic Odyssey For Children
The Dup15q community is on the forefront of driving research and awareness to make real progress in rare disease. Our own Mike Porath, Dup15q Alliance Board member and Founder/CEO of The Mighty, is joining 14 others from Shire, Microsoft, and EURORDIS to form Global Commission to accelerate time to diagnosis for children with rare diseases.
The Global Commission to End the Diagnostic Odyssey For Children ("The Global Commission”) is a multidisciplinary group of experts with the creativity, technological expertise, and commitment required to make a major difference in the lives of millions of children and their families. The Global Commission will develop an actionable road map to help the rare disease field to shorten the multi-year diagnostic journey, which is considered a key to a longer, healthier life.