Sunday, September 18, 2016
Registration begins at 8:30 a.m.
Walk runs from 9:30 a.m. to 11:30 a.m.
Leilehua High School
1515 California Avenue, Wahiawa, HI
Simply click the button below to register for the walk. The cost is $25 per person for advance registration for anyone aged 5 and above. Children aged 4 and under and our guests of honor (individuals with dup15q syndrome) may register free of charge. Everyone registered by August 31st will receive a Believe Walk tee-shirt.
Help make our 1st Believe Walk here in Hawaii a successful event. Bring your running/walking shoes or ride along (strollers, wheelchairs, wagons, keiki ride on toys). Join us for a family fun run/walk/ride as we join others across the mainland in Dup15q Alliance's 2nd Annual Believe Walk to bring awareness to dup15q syndrome and those affected by such a rare chromosomal disorder. Run/walk/ride as many or as few laps around the high school track as you want within the 2 hours. Set your own personal goal or challenge family and friends -- as long as you come, participate, learn about dup15q syndrome and have fun! A balloon artist from Balloon Monsoon will be joining us too!
If you are unable to participate, please consider making a donation - every dollar is truly appreciated.
Be one of the first 100 to register and get a free Kona Ice shaved ice at the event!
Dup15q syndrome is a rare genetic disorder with symptoms including developmental delays, cognitive impairment, seizures, autism and low muscle tone.
Dup15q Alliance provides family support and promotes awareness, research, and targeted treatments for dup15q syndrome. Dup15q Alliance is a 501(c)(3) organization and your donations are tax-deductible as allowed by law. The Alliance is mostly run by volunteers, so your donations directly provide programs and services to families affected by dup15q syndrome.
Dup15q Alliance helps families like ours who struggle every day just to manage the care for our special children. Since our first golf event was held in 2010, many exciting things have happened. For example, Dup15q Alliance has facilitated the creation of nine dup15q clinics and held numerous family conferences and regional gatherings. Meeting with other Dup15q Alliance families helps us to feel less isolated in our journey with this rare disorder. We rest easier knowing which treatments and therapies work best for our kids. On the research front, Dup15q Alliance has funded the creation of a dup15q mouse model at Texas A&M University, an autism study at UCLA and two fellowship awards. By increasing the scientific knowledge of dup15q syndrome, our hope is that one day we will have treatments targeted specifically to the genes affected in dup15q syndrome. Together we can make a difference!