Sunday, September 18, 2016
Registration, along with coffee and snacks, begins at 9:15 a.m. at the old administration building (to the left as you look at the lake from the beach). Walk and fun run begin at 10 a.m.
Green Lakes State Park
7900 Green Lakes Rd, Fayetteville, NY
Simply click the button below to register for the walk. The cost is $25 per person for advance registration for anyone aged 5 and above. Children aged 4 and under and our guests of honor (individuals with dup15q syndrome) may register free of charge. Everyone registered by August 31st will receive a Believe Walk tee-shirt.
Join us for exercise and fun as we walk, jog, and run at beautiful Green Lakes State Park. Choose a 2 mile jaunt on the trail around Green Lake or challenge yourself to a full 5K (about 3.1 miles) around both Green and Round Lakes. The trails are fairly flat and stroller friendly. We'll also have a raffle and plenty of fun activities for the kids.
This year, some of the money raised will support the newly announced Tyler's Travel Fund, set up in loving memory of Tyler Kobuszewski to help families in need get to a dup15q clinic.
Come spend the morning celebrating our kids and raising money for a great cause!
Dup15q syndrome is a rare genetic disorder with symptoms including developmental delays, cognitive impairment, seizures, autism and low muscle tone.
Dup15q Alliance provides family support and promotes awareness, research, and targeted treatments for dup15q syndrome. Dup15q Alliance is a 501(c)(3) organization and your donations are tax-deductible as allowed by law. The Alliance is mostly run by volunteers, so your donations directly provide programs and services to families affected by dup15q syndrome.
Dup15q Alliance helps families like ours who struggle every day just to manage the care for our special children. Since our first golf event was held in 2010, many exciting things have happened. For example, Dup15q Alliance has facilitated the creation of nine dup15q clinics and held numerous family conferences and regional gatherings. Meeting with other Dup15q Alliance families helps us to feel less isolated in our journey with this rare disorder. We rest easier knowing which treatments and therapies work best for our kids. On the research front, Dup15q Alliance has funded the creation of a dup15q mouse model at Texas A&M University, an autism study at UCLA and two fellowship awards. By increasing the scientific knowledge of dup15q syndrome, our hope is that one day we will have treatments targeted specifically to the genes affected in dup15q syndrome. Together we can make a difference!