Can't make it to any of our Believe Walk sites?
This is the walk for you!
Sunday, September 18, 2016
Any time you choose to gather.
Any place you choose to gather.
Gather your family and friends. Dress in blue (our signature color). Make some signs or gather some balloons or decorate some bikes. Take to your neighborhood streets, local park, or high school track. Walk. Know that you're part of something bigger. That's all it takes to raise awareness of dup15q syndrome and Dup15q Alliance.
Simply click the button below to register for the walk. The cost is $25 per person for advance registration for anyone aged 5 and above. Children aged 4 and under and our guests of honor (individuals with dup15q syndrome) may register free of charge.
Don't forget to share pictures of your walk with us!
Dup15q syndrome is a rare genetic disorder with symptoms including developmental delays, cognitive impairment, seizures, autism and low muscle tone.
Dup15q Alliance provides family support and promotes awareness, research, and targeted treatments for dup15q syndrome. Dup15q Alliance is a 501(c)(3) organization and your donations are tax-deductible as allowed by law. The Alliance is mostly run by volunteers, so your donations directly provide programs and services to families affected by dup15q syndrome.
Dup15q Alliance helps families like ours who struggle every day just to manage the care for our special children. Since our first golf event was held in 2010, many exciting things have happened. For example, Dup15q Alliance has facilitated the creation of nine dup15q clinics and held numerous family conferences and regional gatherings. Meeting with other Dup15q Alliance families helps us to feel less isolated in our journey with this rare disorder. We rest easier knowing which treatments and therapies work best for our kids. On the research front, Dup15q Alliance has funded the creation of a dup15q mouse model at Texas A&M University, an autism study at UCLA and two fellowship awards. By increasing the scientific knowledge of dup15q syndrome, our hope is that one day we will have treatments targeted specifically to the genes affected in dup15q syndrome. Together we can make a difference!