We are very excited to bring back the 4th Illinois Golf Outing for Dup15q Alliance. We are expecting about 250 people at this event, including 120 golfers. We invite you to help us make this event another huge success.
To register for the golf outing and dinner or to make a monetary donation or sponsorship with a credit card, please complete our registration form. Space is limited.
Full-day registration includes golf, cart, lunch, dinner and entertainment. Golf only and dinner only options are available. All golfers are welcome. Format is a four-person scramble. Hole, beverage cart, cocktail hours and dinner sponsorships are also available.
We are also looking for:
Email us at email@example.com for instructions on where to send physical donations. See our registration page for hole sponsorships and monetary donations. Please email us or contact Ember at (773)704-9722 or Shannon at (773)216-0374 with questions.
We appreciate your participation and donations. With your help, we can create a better tomorrow for all those affected by dup15q syndrome. Thank you for your support!
Dup15q syndrome is a rare genetic disorder with symptoms including developmental delays, cognitive impairment, seizures, autism and low muscle tone.
Dup15q Alliance provides family support and promotes awareness, research, and targeted treatments for dup15q syndrome. Dup15q Alliance is a 501(c)(3) organization and your donations are tax-deductible as allowed by law. The Alliance is mostly run by volunteers, so your donations directly provide programs and services to families affected by dup15q syndrome.
Dup15q Alliance helps families like ours who struggle every day just to manage the care for our special children. Since our first golf event was held in 2010, many exciting things have happened. For example, Dup15q Alliance has facilitated the creation of nine dup15q clinics and held numerous family conferences and regional gatherings. Meeting with other Dup15q Alliance families helps us to feel less isolated in our journey with this rare disorder. We rest easier knowing which treatments and therapies work best for our kids. On the research front, Dup15q Alliance has funded the creation of a dup15q mouse model at Texas A&M University, an autism study at UCLA and two fellowship awards. By increasing the scientific knowledge of dup15q syndrome, our hope is that one day we will have treatments targeted specifically to the genes affected in dup15q syndrome. Together we can make a difference!