Rare Disease Day 2019

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February 28th is the designated "Rare Disease Awareness Day" across the world. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare disease. 

There are several ways you can help raise awareness and support of the Dup15q Alliance in honor of Rare Disease Day

1. Office/Workplace Dress Down Day

Encourage your office or workplace to sponsor a fundraiser, where they make a donation to the Dup15q Alliance in order to have a "jeans" day at work! The suggested donation is $10. 

Start your fundrasier here!

Here is a Sample Letter for you to use. 

Dress Down Day Poster 

Sample letter for Newspaper


2. Personalized T-Shirt

Support the Dup15q Alliance in their mission by purchasing one of our personalized shirts.

 

Rare Disease Day Shirt Sale Closed


3. Classroom Community Outreach and Awareness Day

Ask your childs classroom to host a wear your blue and mismatched sock awareness day for Rare Disease Day! Here's how it works!

On Rare Disease Day encourage each student to wear mismatched socks and bring a $1.00 that will support the Dup15q Alliance.

Dup15q Alliance will provide:  

Handouts for the class

 

Email Believe@dup15q.org by 2/15 if you wish to participate in the classroom event.

 

 

Please upload pictures from your "Rare Your Blue for Dup15q" day HERE!

Checks can be made to Dup15q Alliance and sent to PO Box 1669, Highland Park, IL 60035 with the memo, Blue for Dup15q.