On November 5th, 2017, Duper Andrew's dad, Jim Borden is running the TCS NYC marathon in order to raise awareness and funds for Dup15q Alliance.
By raising awareness we can help other families who may still be searching for answers. Any funds raised will go to Dup15q Alliance who provides family support and promotes awareness, research and targeted treatments for dup15q syndrome.
"My 3 year old son was diagnosed with Dup15Q syndrome as an infant. Dup15Q is a rare and, in most cases, random genetic disorder that is associated with a whole host of issues. These issues include, but are not limited to, developmental delays, autism, and seizures.
My wife and I were at a loss when we learned of the diagnosis as our doctors (like most) didn't know a whole lot about this syndrome. We quickly discovered the Dup15Q Alliance, which has had an invaluable impact on our lives. This group is in many ways a second family and a support system for us. In addition to the networking, this alliance both advocates and funds research on behalf of Dup15Q families.
I've picked up running as a hobby over the last year and recently won (at random) entrance into this November's New York City Marathon. I'd like to use the training for the race as an opportunity to raise awareness and funds for the Dup15 Alliance. Join me on my journey."
Jim's Goal is to raise $1,500, please help him meet and EXCEED that goal in support of Andrew and all of his friends with dup15q syndrome.
Checks made payable to "Dup15q Alliance" can be sent to us at P.O. Box 1669 Highland Park. Please note "NYC Marathon" on the check.
We also invite you to join Dup15q Alliance's Believe Walk on October 1st, 2017.
Dup15q syndrome is a chromosome abnormality in which a child is born with extra genetic material from chromosome 15. Individuals with dup15q syndrome have delays in language development and motor skills such as walking or sitting up. Other traits may include low muscle tone, short stature, and intellectual disability. Many individuals with dup15q syndrome display features of autism, such as problems with communication, social interactions, and repetitive and stereotyped behaviors.
Dup15q Alliance is an organization whose sole focus is providing support and promoting awareness, research and targeted treatments for dup15q syndrome. In the last few years Dup15q Alliance has facilitated the creation of nine dup15q clinics in major medical centers, sponsored several research projects including the creation of a mouse model and held scientific and family conferences. Dup15q Alliance is a 501(c)(3) organization and donations are tax-deductible as allowed by law.
Visit Dup15q Alliance's family stories pages to learn a little more about others affected by dup15q syndrome.