Other Useful Links

Special Needs Resource Project
By State

Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs. This site is designed to help you get a jump-start in your search for helpful information and resources. Every situation is unique. Our aim is to help you learn the basic skills you'll need to obtain the specific resource information, equipment, and services your child and family needs. Though focused on children ages 0-22, most of the information we offer is applicable to adults as well.

eParent Special Needs Resource Directory 

eParent Special Needs Resource Directory provides a comprehensive guide for parents and families of children with chronic health issues, disabilities and special needs, as well as to physicians, allied health care professionals and educational professionals who are involved in their care and development. This directory is designed to assist in your search for helpful information and resources for every situation.

Mother's Rest Respite Retreat

At A Mother's Rest, we believe that frequent, affordable respite is a key factor in keeping special needs parents and caregivers healthy.   Ensuring the best care of disabled children and adults means ensuring the best care for their parents.

NORD - Protecting Rare Disease Patients: Principles for Health Care Reform

Before the Affordable Care Act (ACA) was enacted in 2010, rare disease patients could not access health care coverage due to various discriminatory insurance practices, limited Medicaid eligibility, and debilitating cost-sharing. While imperfect, the Affordable Care Act successfully reformed these practices by forbidding insurers from discriminating against rare disease patients, outlawing annual and lifetime caps, expanding Medicaid, closing the Medicare Part D donut hole, and more. 

Understanding Accessible Housting: The Fair Housing Act

An accessible home is one that allows its occupant to do what he or she wants and needs to do, as independently as possible. If you or someone in your family is disabled, your home may need specific modifications to make it accessible for daily living. You are protected under the Fair Housing Act, which stipulates property owners to make, or allow residents to make, a home accessible for those with specific or special needs.

Patient Assistance Programs for Sabril® and Currently Available Generic Vigabatrin

Due to recent challenges reported by patients and healthcare providers, the following table was developed to help you and your healthcare provider understand currently available patient assistance programs and their requirements for Lundbeck Sabril® and generic vigabatrin products offered by PAR Pharmaceutical, Amneal and Upsher-Smith as well as a private foundation offering help with co-pays.

20 Ways to Teach Non-Disabled Kids about their Disabled Peers - From A Day in Our Shoes

We know that 15-20% of our school children have IEPs. Why are we not educating communities about this? We owe it to our kids, both the non-disabled and disabled ones. They have to learn how to interact, how to live and work together. This is their future and it’s ours.

Epilepsy Foundation Kids Crew

At the Kids Crew, we want you to use your imagination and think creatively. We know kids have unique gifts that can be used to give back to others under the three areas on which we focus. We want you to take it upon yourself to come up with ideas that can impact your community based on what you have experienced. Doing so allows for teamwork, helps you learn more about epilepsy, and gives you confidence. Our belief is that you can use your talents to give back to others and to make a real difference. The program is free to join and is for kids ages 14 and under of all abilities. If you don't have epilepsy, we still want you to join. Often, siblings, friends, and relatives of those with epilepsy are the best advocates. We are looking for those who want to learn, spread awareness, and make a difference. And have fun, too!!