We are excited to offer some custom pintables that may help the transition back to school be a bit easier.
The purpose of the "About Me' printable is to share information with those people in your child's school who may not have time to read the entire IEP file for every student. It is to provide an overview of the key points and not to replace an IEP.
Share with general education and specials teachers, substitute teachers, therapists, administrators and other school staff who may have direct contact with your child.
Follow the link to create your own from our template: you will be prompted to set up a free Canva account. Downloading a PDF is free and you can print from home.
Need some help? Send your child's info to Advocacy@dup15q.org and we can create one for you and mail the printed version to your home at no cost to you!
The purpose of the Rare Disease Medical Card is to provide a brief overview of your child’s medical needs for caregivers. This small card carries information about your child’s health and is valuable in emergencies when you are not immediately available.
Need some help? Send your child’s info to Advocacy@dup15q.org and we can create one for you and mail the printed version to your home at no cost to you!
The Compassion Experience was created to develop a sense of understanding and compassion among grade school age peers. Because every child is unique, feel free to customize the experience to better fit your child. Email firstname.lastname@example.org for your compassion experience kit.
Dup15q Alliance will provide:
- "Chromosome Kids Like Me" book. A child friendly rhyming story that compares genetic disorders to pairs of socks. It promotes inclusion and acceptance from other children, and explains how children with a genetic condition may need a little extra help to play and get involved.
- Dup15q Alliance Blue Bracelets/Temporary Tattoo
"Introduction to autism that aims to raise awareness among young non-autistic audiences, to stimulate understanding and acceptance in future generations. It is intended to be viewed, discussed and shared widely by anyone but especially teachers and parents".
This free, interactive course is designed as a part of the school nurse training program. The Epilepsy Foundation developed "Seizure Training for School Personnel" (CDC Course No. RPWD 2903) in response to the need for a consistent educational tool to help promote a positive social and educational environment for students living with seizures and epilepsy.
The Individuals with Disabilities Education Act (IDEA) says that each child who has a disability and needs special education and related services will receive a free and appropriate public education (FAPE).
Every child deserves a quality education. The Individuals with Disabilities Education Act ensures that all children with special needs have access to a “free appropriate public education” and they have the necessary tools to meet their educational goals.
Individualized Education Programs play a critical role in ensuring that students with autism and other special needs have access to the education that they deserve and to which they are entitled. It is important to understand your rights, as well as the IEP process, to become the best advocate for your child’s education. And this guide is a great place to start!
For incoming kindergartners with special needs, the federal special education law (i.e., the Individuals with Disabilities Education Act) allows the school team to develop either an Individual Family Service Plan (IFSP) or an Individualized Education Plan (IEP). However, no matter which plan your child has, it should be appropriate for a kindergarten-aged child rather than for a preschooler.
Downloadable Seizure Action Plan with Emergency Seizure Care Instructions.
Procedural Safeguards, sometimes called Parent Rights, are the laws each state has implemented in order to ensure compliance with IDEA (Individuals with Disabilities Education Act). While the Federal Government establishes laws for special education through the IDEA, it does not always provide specifics on how to implement the laws.