Dear Friends and Family:
As you know, our Isabella has special needs, caused by dup15q syndrome, a rare genetic disorder.
Having a child with special needs is a more than a full time job. It is a never-ending mission of seeking answers and finding ways to cope with the cards that have been dealt. All the empathy and counseling in the world could not come close to what Dup15q Alliance has done for our family. It is impossible to describe the sense of calmness and security I now have because I found people with answers and continue to find more. People who are genuinely interested in dup15q syndrome issues and contribute to finding answers for all who are affected are simply priceless.
Please help us support Isabella and others like her by participating in Dup15q Alliance’s $15,000 in 15 days fundraiser. Each year from Valentine’s Day to Rare Disease Day (February 29th) Dup15q Alliance hosts this fundraiser, but this year we have added incentive. Another very generous Dup15q Alliance family has agreed to match the money raised up to $15,000. We want to make the most of this opportunity.
So, please consider making a donation today! You can make a donation online at www.dup15q.org or send a check to Dup15q Alliance, P.O. Box 1669, Highland Park, IL 60035. Be sure to note that it’s in honor of Isabella, so we can see how much our family is helping Dup15q Alliance. Even $22, one for each year Dup15q Alliance has been assisting families like ours, would go a long way to funding research, education and support. Together we can make a difference!
Happy Valentine’s Day!
Isabella and her family