There are several ways to make your contributions:
-We encourage donations via our Facebook page since Facebook has waived fees for non-profits, enabling every dollar you donate to go towards our goals!
-Or you can donate through our web portal on Network for Good
- And there is always the USPS Send/Mail your support
PO Box 1996, Highland Park, IL 60035
If you have any questions, please email [email protected]
• The Dup15q Alliance keeps comprehensive database of all member families enabling the Alliance to connect newly diagnosed families with others to share support. The goal this year to verify the most up-to-date contact information for our families.
• We will encourage, support and help to organize an annual regional gathering for each of our regions.
• Keep Dup15q Alliance families, friends and supporters up-to-date on the latest information regarding chromosome 15q duplications, medical care recommendations and opportunities for research.
• Support at least 10 new Chromosome Q-usaders to raise awareness for dup15q syndrome in their communities.
• Develop a peer education program for use in communities and schools to increase support and education around dup15q syndrome to improve the everyday lives of dupers.
• Collect information from our families about dup15q symptoms, the treatments and treatment outcomes that they are experiencing to enable families, researchers and physicians to better understand the characteristics of the syndrome and to help determine areas that need further research and where to targeted treatments to improve the lives of those affected by Dup15q Syndrome.
• Compile the needed data and analysis for research grants and partnerships with industry to develop new treatments.
•Update medical care guidelines that take into account current experiences and needs of those affected by dup15q syndrome.
•Substantially increase Tyler’s Travel and Clinic Support Fund to enable as many affected by dup15q syndrome to be cared for by one of the Dup15q Alliance Multidisciplinary Clinics.
•Add up to 5 new Dup15q Alliance Clinic locations.
•Support of dupers and families that are transitioning to different care needs as they grow older and looking into the future.