#15forDup15

Nicholas Ferroni is a revered educator and historian who mentors his students with deep personal commitment and care. This former actor turned teacher, writer, and host was recently named one of the 100 most influential people in America. 

 Nicholas has teamed up with the Dup15q Alliance for the #15forDup15 Challenge to bring awareness to Dup15q Syndrome. 

 

 

The Challenge

The 15 for Dup15q challenges supporters to perform exercises that would be a movement that a child or adult with dup15q syndrome would not be able to or would have extreme difficulty trying.

Plank, Burpees, Sit Ups, Squats. 

Do you want to join the #15fordup15q challenge?

Grab the camera, select a 15 second plank, 15 burpees, 15 sit ups or 15 squats. Or do all 4! Challenge 5 people and post to your social media accounts with #15forDup15

 
 

Interested in supporting our research efforts? Click the link below to donate!

Yes! I want to help!

 

Imagine your child/grand-child/niece/nephew not being able to walk, or crawl or event sit up independently, ever.  These motor milestones the majority of kids achieve relatively easily but they do not come as easily to kids with dup15q syndrome. Motor delays and challenges are one of the earliest signs of dup15q syndrome in infancy and childhood. From being "floppy babies" to struggling to learn the movements that most kids excel at dupers spend hours upon hours in physical therapy to help them learn things that we take for granted.

Dup15q syndrome is a rare genetic disorder that impacts roughly 1300 individuals worldwide. In addition to motor delays, dup15q Syndrome is the largest genetic cause of autism spectrum disorders, approximately 50% of children with Dup15q syndrome will have at lease one seizure in their lifetime and 75% will be diagnosed with an Autism Spectrum Disorder. Those impacted with Dup15q Syndrome also experience a range of challenges including delays in speech and language, cognitive impairment, sensory processing disorder and behavioral challenges. 

At this time, there is no cure for Dup15q Syndrome. The Dup15q Alliance works to raise awareness and promote research into chromosome 15q duplications and to find targeted treatments so that affected individuals can live full and productive lives. Together with our families, Dup15q Alliance is working towards a better tomorrow for children with dup15q Syndrome. The families are holding on to hope and putting all their faith in the Alliance's motto, "Believe".