Newsletter

January 30, 2015
2015 Vol. 1: This is Your Conference

Stronger Together: This is Your Conference by Alison Kalnicki
​Hot Conference Topics
Conference Who's Who: Your Conference Presenters
Conference Research Passport: Research Opportunities at the Conference by Kadi Luchsinger
Cheers to Our Volunteers: Sandy James
Dup15q Syndrome Research Update
Reflections from a Grandparent: Ella Rearranges My Life by Geraldine Puttick
​Reflections from Siblings: She Always Shows People She Loves Them by Kelley and Lucas Mullen
Family Portrait: Arielle's Story by Angelic Yao
Upcoming Meetings and Announcements

(2015 conference; family conference; cannabinoids, seizures, vision, PODDS, communication, potty training, Rick Guidott, Postitive Exposure, financial planning, career planning, Robert Naseef, Edwin Cook, Orrin Devinsky, Brenda Finucane, Rylie McHam, Donna Richards, Mike and Jeff Rozovics, Cell Lines, Coriell, Registry, Tooth Kits, Reiter tooth study, Face Base, clinics, REN, Rare Epilepsy Network, documentary, Jo Ann Santangelo, Nicholas Stokes, Ella Lawson,  Kathleen, Rare Disease Day, Believe Walk)