Newsletter

February 18, 2016
2016 Vol. 1: Support is a Verb

Support is a Verb by Nicole Cleary
Change is Inevitable; Growth is Optional by Tom Doyle
Transitions by Kadi Luchsinger
Issues in Early Adulthood: Guardianship by Paul and Anne Karch
Guardianship Around the World
Remembering Michael John Hauler
Dup15q Clinics Update by Jane Kim
Gastrointestinal Problems in 15q Duplication Syndrome, European Journal of Medical Genetics
Alliance Welcomes Three New Board Members by Deirdre Popp
Family Portrait: She Lives a Very Full Life by Debbie & Shannon Neller
International Dup15q Medical Registry Update by Rylie McHam
Get Involved: Dup15q Alliance Committees
Announcements

(Kadi Luchsinger, Executive Director, resignation, Tessa Quinlan, Elaine Lowell, David Gifford, lawyer, Wisconsin, guardian, 18 years, legal issues, Australia, Italy, Canada, Memphis, Pennsylvania, Boston, central database, statistics, sleep habits, GERD, constipation, GI, behavior medication, questionnaire, committees, help, volunteers, fundraising, sunshine, conference, regional gatherings, research, family, finance, public relationals, webinar, website, Believe Walk, The Mirror newsletter, Rare Disease Day, $15,000 in 15 Days)