Newsletter

June 13, 2016
2016 Vol. 3: Growing a Strong Dup15q Alliance

INSIDE THIS ISSUE

THE DUP15Q ALLIANCE & SCIENCE
YOUR NEW EXECUTIVE DIRECTOR: VANESSA VOGEL-FARLEY
CLINICAL TAKEAWAYS FROM SCIENCE MEETING
REFLECTIONS ON THE EUROPEAN MEETING 2016
BELIEVE WALK
CHEERS TO OUR VOLUNTEERS
FAMILY PORTRAIT

(James Fink, seizures, neurons, dup15q fellowship, Kevin Hope, UBE3A, HERC2, clinics, dup15q database, nonsolo15, EEG, MRI, ACTH, Beleive Walk, Conference)

June 13, 2016
2016 Vol. 2: Celebrating Our Clinics

Celebrating Our Clinics by Nicole Cleary
Family Voices: Dup15q Clinic Experiences by Lisa Feehery, Colleen Lowell, and Teana Ebensperger
Meet a Dup15q Clinic Coordinator by Jennifer Young
Caravan to the Clinics by Kim Maring
Let's Get Together
Cheers to our Volunteers
Did you know?: Fundraising Facts
Family Portrait: He surprises us every day... by Robert and Adrienne Paradis
If I could write a letter... by Eileen Flood O'Connor
Nonsolo15 European Meeting by Alison Kalnicki
Announcements

(multidisciplinary approach, sleep issues, seizure control, gastroenterologic issues, neuropsychological issues, Professional Advisory Board, Dr. Dimitrios Arkilo, Minnesota Epilepsy Group, Dr. Carolyn Schanen, Dr. Thibert, Boston clinic, stimulant attention medications, Seattle clinic, Dr. Marcio Sotero de Menezes, commonalities, St. Paul clinic, relationships, Multidisciplinary Clinic Database, medical care, research, targeted treatment, regional gatherings, Believe Walk, awareness, secondary diagnoses, Applied Behavior Analysis)