Toll of caregiving in parents of children with medical issues.

Dup15q Alliance is excited to join with several other rare epilepsy organizations including The Brain Recovery Project, Hope for Hypothalamic Harmartomas (Hope for HH), Childhood Epilepsy Surgery Foundation, Tess Foundation, 14RingUSA, Phelan-McDermid Syndrome Foundation, and Lennox-Gastuat Syndrome (LGS) Foundation to present a three-part series on the toll of caregiving in parents of children with medical issues.
Special thanks to Monika Jones and the Brain Recovery Project for coordinating this terrific content. The links to join the webinars will be posted on the PMS Pathways page on our website. The webinars are scheduled for:
The call numbers are linked to the dates above, but will not be live until the time of the webinar. We will also post a reminder when we get closer to the dates. You can call in to just one or all three. 1000 participants can join each webinar and the first 100 people to sign in will be able to chat/interact with the facilitator, Eileen Devine.
About the speaker. Eileen Devine is a licensed clinical social worker. You can read more about her here. She is also the author of this blog post. Eileen seeks to provide families with tangible things to do – everything from introspection and reflection (how to do it, why it’s important, etc.) and then more concrete self-care practices that relate to mind/mental health, body (physical health and also nervous system health) and spiritual health. She often also talks about relational stress that is present in family units and parenting partnerships/marriages and what can be done to help strengthen those relationships as well.