Dup15q Alliance is a nonprofit 501(c)(3) corporation. Originally founded under the name of IsoDicentric 15 Exchange, Advocacy and Support in 1994 by Donna Bennett, mother to Joshua (a young man with idic(15)) and Brenda Finucane, MS, LGC, who was then the Director of Genetic Services at Elwyn Inc., as a list of 13 families raising children with chromosome 15q duplications, the support group grew and in 2004 it was officially incorporated into a nonprofit organization. The organization's name was changed in 2011 to Dup15q Alliance to encompass both interstitial and isodicentric variations of the disorder known as chromosome 15q11.2-13.1 duplication (dup15q) syndrome. Today, there are almost 1,000 families from around the world affiliated with Dup15q Alliance. The organization is a mostly volunteer run organization supported by grants, donations and many hours of volunteer effort.
Dup15q Alliance Tax Identification Number is 20-0751232