For the past twenty-two years, Dup15q Alliance has provided family support and promoted awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome. We're working for a better tomorrow for all families affected by dup15q syndrome.
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Understanding dup15q syndrome begins with a basic lesson in genetics.
Provide comprehensive evaluation and treatment of individuals with dup15q syndrome.
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Dup15q families around the world host events to benefit Dup15q Alliance. See if there's one in your area or plan one of your own! We can help. Contact us at [email protected].
View current fundraisers here
Interested in spreading awareness and raising funds for Dup15q Alliance?
Movie nights, golf outings, run/walks, dinner and entertainment....it's limited only by your imagination! Email us at [email protected] for help getting started.
As part of our mission, Dup15q Alliance seeks to unite families, researchers, and professionals; and promote research, awareness, and understanding of chromosome 15q11.2-13.1 duplication syndrome and related disorders. Dup15q Alliance formally endorses and funds research and collaborates with researchers interested in research on chromosome 15q duplications by disseminating research information and promoting opportunities for Dup15q Alliance families to participate in research studies.
The Dup15q Alliance's involvement in this is to improve epilepsy care at as many facilities as possible, and to get as many hospitals signed up to dedicate themselves to the best care and collection of information to continue improving patient care.