October 3-8th, Irvine California 2018 RARE Patient Advocacy Summit (Global Genes) THRIVE


Executive Director, Vanessa Vogel-Farley, had the pleasure of attending this year's Global Genes Rare Patient Advocacy Summit, where we had the chance connect and learn from experts in rare disease. The Dup15q Alliance was proud to be part of the team to introduce the THRIVE initiative at the 2018 Summit.


THRIVE is a collaborative initiative to engage, embrace and drive change in the rare disease community. THRIVE is a commitment to the rare values of trust, honest communication, respect, intentional, vulnerability, and engage & empower.  Watch the video from the summit to learn more!

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